I'm in the same boat. I've had nearly all these symptoms for a long time now. Really makes it difficult to keep up with responsibilities.

Listen, IMHO if you have narcolepsy it's much more symptomatic than sleeping at inconvenient times. It can start that way but usually progress. Absolutely, one should get a sleep study. Statistically, it's more likely that one has apnea in the absence of cataplexy. Feeling tired all the time is serious regardless of the cause.

​@@user-qm8gl5fj6vpretty sure I have both lmao, going to see a sleep specialist this Tuesday

I have Narcolepsy w cat, diabetes and a horrible back. Still, it's great to be alive. Screw folks that don't understand. Im sure at some point they will experience some karma that will adjust their lack of empathy. If you get flack at work, get a lawyer. I HATE lawyers, but everything has its place.

If you've got comorbidities, how do they tell? I've got cptsd with heavy ptsd symptoms. I've had sleep paralysis since I was 4. I started getting it after witnessing a very traumatic event involving my mother. I was abused from 2 weeks old, neglected, neglected not fed ect I read that people with any kind of ptsd can get narcolepsy as a result of all the feelings they feel. I've got ibs already from the cptsd, possible pots and possible narcolepsy. It doesn't stop.

Hope it gets better for us. I will get it right!

Oh my goodness, you could be describing me. I hope you have a good diagnosis, doctor, and you are finding a treatment that works. My psychiatrist just asked me to get a sleep study because he suspects I might have this or another sleep disorder. I never thought about it, I always just felt super ashamed and like a total failure.

I have the exact same symptoms as you!! I start dreaming in a couples minutes and they’re also extremely vivid

Do you ever start to dream before you even close your eyes bc that always makes for a wild time lmao

@@BriEMcN Yess! If I fight sleep for long enough, I start to basically hallucinate. I start to dream, but can feel my body and can halfway see my surroundings. Those are the weirdest ones.

Have your thyroid checked.

This is pretty much my experience. I always thought it was normal. But the fact that I know for a fact I have adhd and I'm one of the weird ones that actually gets energy from stimulants. Taking vyvanse has been the only reason I don't have mininaps while driving, don't fall asleep while reading to my students, and am just generally able to not suffer being tired all day. When I was a kid I never had good sleep, I've cycled through various forms of insomnia my whole life. I've never been able to sleep a full 8 hours even when I try. Half the time I'm dreaming and hearing things before eyes are closed.y husband says I will go from having a normal conversation before bed to slurring and not making sense at all but still trying to talk. I will already be dreaming at this point and he will just be like go to bed you aren't making sense. It's like the permission I need to let my consciousness fully switch to dream state instead of being in both places at one. I thought this was normal! Maybe I should take a sleep study....idk.

Wow, I feel the exact same way. I have always felt so ashamed about my constant falling asleep and sleepiness. I never thought I might have an actual disorder until my doctor just brought it up.

I have Narcolepsy but had MS for many years before I was diagnosed with Narcolepsy. It was when I went to see my MD thinking I was having MS problems that they recognized the narcolepsy. Identifying the problem is step one to getting better...hope they find the problem for you.😊

@@melikka808 I actually question whether or not I have MS, but was diagnosed with fibromyalgia years ago and recently chronic fatigue syndrome. I'm just tired of feeling tired 😩.

What the rheumatologist says? In my case they where sure it is narcolepsy, because I have all the symptoms, and cataplexy..but sleep test come back normal..they gave me fnd diagnose..are you any better?

I took 3 MSLTs for me, I started worrying my insurance wouldn't cover a fourth. By your symptoms I'd guess they have already given a clinical diagnosis, unfortunately it can be a real pain jn the a$$ getting that medical diagnosis and the drugs that may change your life.

​@@melikka808Is MS a auto immune disease? It's amazing how many there are.. Narcolepsy and Diabetes, my illness are both auto immune.

REALLY FLICKING FUNNY

Not funny inpassed out yesterday

@@karineaudet6270 I was literally quoting what was in the video not actual people passing out

@@R0sie. sorry. Im actually in a no meds phase and a bit edgy. Sorry.

@@karineaudet6270 No worries!

Going through same thing right now have a lot to study but feeling sleepy.

I have had it yes but only when I am tired and I know I have to find a place to rest or else I will be in discomfort. If I don’t sleep or fight it, I feel like I haven’t slept for days. My eyes hurt,I feel like I am going mad and worst part is that I cannot sleep even though I re😢want to. You don’t experience these with these yawns?

Any response should start with, See a sleep doctor... Aside from that, I do have narcolepsy with cataplexy, and I didn't think, nor have fielded any complaints, that I was excessively yawning. Of course, we are all unique. Narcolepsy is rare, and it is more likely you have sleep apnea... or something completely different. A one night sleep study will identify any apnea. It is mandatory to fix that before ANY narcolepsy sleep study is performed. If you think you may have narcolepsy its a LONG journey for a medical diagnosis. Consider a sleep study. In closing... these observations may not apply outside of the state I live in, inside of the USA.

Quit lying

Scary. Most of us are only this bad if we have to chronically delay sleep attacks. Eventually, we lose, and most of my extreme symptoms happen then. I only drive with my wife as with any hint of fatigue she takes over. Nevertheless, I have nothing to complain about. Typically, my cataplexy isn't too bad. Have you tried Modafinil ? Sodium oxipat ? Is narcolepsy a dynamic disorder that worsens over time ? BTW, the dry humor of Monty Python places me in absolute cataplexy... thanks, Brits !

Yes, it’s often done at home. But you need the ability to take five naps each scheduled two hours apart. So you would need someone to watch your child for the day. You will need a dark, quiet place free of distractions to take your naps.

Me too!!! 🤦🏾‍♀️

I think I nodded off at least 3-5x just writing this out. 😢😢😢😢! I no longer dive on the interstate only in town to local stores.

I do this, but when I feel it coming on I jump up and start doing things; anything to stay awake, including having a cup of coffee (which doesn’t really work). It’s miserable. I take several 20-30 minute naps during the day too

yo the bad trip one... that's been me since August of last year. Kept thinking I was gonna pass out cause of a panic attack...

There actually is some evidence that narcolepsy may be an autoimmune disorder

I got tested too, without a diagnosis. Cafeïne helps me and staying away from sugar too.

Have you gotten a sleep study done? A multiple sleep latency test is needed to screen for narcolepsy.

Thank you for this post. I’m praying for you.

@@unspokentopics what solutions you thinking

I'm not sure where your from, but in my case, my insurance turned me down but approved it on appeal. The initial denial shook me up so much that I got a lawyer. My lawyer became my dedicated advocate as he saw me melt down with cataplexy as I desperately told him how i felt. He told me that most initial denials occur because they wait till Socal Security Benefits take place. If the federal government recognizes disability, it's very difficult for private insurance to weasel out. Furthermore, in my situation the SSDI ruling ( first filing) reduced my private insurances liability. For those that suspect they may have narcolepsy, get on with testing. It's a long road between clinical diagnosis, medical diagnosis, start of treatment, and legal disability. Narcolepsy can progress to complete disability. if you start the journey late ( as I did ) you will find yourself without income, liquidating assets, and going crazy because of ridiculous delays while the bills are collecting. You may loose self worth and become depressed, thereby increasing the depth of and frequently of cataplexy. Be smart ! Quantify how dangerous your condition is to others and install a dash cam in your car. If it appears you're not going to kill someone driving. Hire a lawyer before you tell your employer of your issue. Since some employers are good and others are bad.... One needs to be smart and lay out a logical plan with full knowledge of legal protections and responsibilities. If things go great a treatment program will do wonders for you. In some states, the DMV doesn't require notification of narcolepsy. Indeed, I have my license, but I only drive on short trips with an aware passenger. I hope you get help and find a lawyer ! Some will take your case and accept a percentage of your initial settlement. Getting a lawyer will mentally help offset the feeling of hopelessness on can feel. One can't bear the weight of untreated narcolepsy and a disability system that must look at every claim with suspicion. It took 2 years for me...

May Allah protect you from any disorders and diseases that exist on this planet earth. Hope your symptoms are not of narcolepsy or any other serious problem and you can be cured soon. Ameen

Default notice.. I have narcolepsy but am no doctor... Narcolepsy is due to an autoimmune disease that damages cells in the brain that regulate sleep cycles. Other forms of Narcolepsy can occur with mental illnesses. In either form the best way to highlight narcoleptic symptoms is to look at a sleep study. During the night phase sleep is monitored to ensure proper breathing and a minimum of 6 hours sleep. If a patient presents normal breathing they progress to the daytime test. Anyone in the daytime test has been "cleared " from apnea and remains for narcolepsy testing. During the day a patient will be asked on 5 occasions, to lay down and stay awake. It's considered a marker for narcolepsy if one falls asleep fast and immediately enters REM sleep. I can't remember any specific qualifications but I fell asleep 5 of 5 times within 30 seconds and immediately fell into REM. REM sleep is tracked by electrodes fixed to head, if It occurs near sleep it is NOT in proper sequence and by exclusion of apnea has narcolepsy. Frequently narcolepsy will cause cataplexy where its belived the paralysis state in dreams is active and triggering by emotion, although the patient is fully awake, a muscle paralysisis observed. Unfortunately chronic sleep apnea can mimic narcolepsy so just discussing symptoms without excluding one from the other is not possible and in either case only a clinical diagnosis can be made without testing. An insurance company considers non medical diagnosis week a water. Not all Narcolepsy patients experience cataplexy... No sleep apnea patients experience cataplexy. Sleep apnea will certainly affect a proper sleep patterns and a good doctor will insist that its checked for and treated first. I had to wear my mask for 6 months, without fail during sleep or be disqualified for my daytime narcolepsy test. Today's sleep machine uploads patient use to doctors office ! Expect a drug test before all testing. I probably weaved in info you didnt want to know.....

@@user-qm8gl5fj6v Thanks. I just had a in lab sleep study, I had an at home one done months ago. I have complex sleep apnea but have been wondering if narcolepsy may be present as well. I have experienced sleep paralysis but not cataplexy. we will see what the results are from the lab sleep study in a few weeks. hopefully get some answers.

I have a 40 minute drive too work and from work and everyday I’m on the expressway fighting sleep. It’s terrible to deal with

I need so much my ritalin its not fair

@Mr_Biz wich ones im desesperate.

Im always tired too. My hemoglobin and thyroid is normal. Not sure what’s wrong with me I can’t live like this

also my dad has narcolespy and cataplexy and i have tourettes

I’d try to get in for a sleep study and/or get some lab work done to make sure you’re not deficient in something. I’m tired a lot too even after sleeping a lot. Not sure what’s wrong with me

@@milliem8051 I know I'm definicient in iron, vitamin D and B but idk i might ask doctors

I'm definitely going to pray for you too

It doesnt matter how old you are..I have all the symptoms, and I also lost muscle control, and I need to stop working..but the sleep test was normal..so they couldnt conform narcolepsy, but they gave me Fnd diagnose, I still sleep most of the day, did you do some sleep test?

@@stellaancimer8505 I’m waiting for my appt - in the next month

​@gaylelauren5691 Sorry for injecting myself here.. In my situation the overnight sleep ( minimum +6 hours ) qualified me for the daytime test. I only qualified on the 3rd attempt. During day testing I fell asleep with seconds of laying down. Furthermore I immediately entered REM sleep. I'm going to give you some advice. Be prepared for no answers, because with narcolepsy it can be difficult just getting 2 hours a night without waking up for20 then going back asleep... disqualified, try again. You could just have a good day... disqualified. Don't mean you don't have it just you didn't present. Lastly, don't be surprised if the ask for a sample for a drug test before you get in bed. Relax, don't take things personally. Remember it takes 6 hours of sleep to qualify for the real test.

@@user-qm8gl5fj6v thanks, I mean I guess it doesn’t matter bc I won’t b able to take the medication they will prescribe for it - but that does sound like me I fall asleep very fast in the day and wake up a lot at night (I just woke up now - and at 340am & 1:30, it’s 4:58am rn. I don’t care about the drug test although the first time I was a little offended bc I told him I was in recovery. Idk what it is I did see a thing about shift work sleep disorder

Yes it can.

because it becomes progrssive inflammation and causes the most painful disease on earth called adhesive arachnoidits

SERIOUSLY ?

Your heart probably disagrees.

No u don’t

are u a doctor 😭

It doesn't matter what you or I believe, as neither are qualified to offer any "Proof". I just go with my symptoms and medical reports that do their best to describe this illness and have developed tests to separate the liers from the suffering. If you have doubts, thats your right to voice them, but I suggest you go to a board that can address them with scientific argument. Otherwise, your voice is empty. Once you prove your medical certifications, I'm sure they will welcome you.

SHOUTING DOESN'T PROVE YOUR POINT. WHERE'S YOUR EVIDENCE AGAINST THIS?!