My 64 year old husband was just diagnosed with this disease on his birthday 3 weeks ago. I’ve noticed changes with his speech, personality etc….I’m not sure what or how I will handle this or where to get help for him. We have insurance but the doctors aren’t really telling us much or helping at all. As far as our house well we lost our home 4 years ago and now we’re in a 3 story townhouse which I’m trying to get my credit score and finances together so I can get him into a ranch house so everything will be on one level. I’m still working full time and can’t afford to quit at this time but I know soon I will have to. Whoever reads this keep us in your prayers please! Thank You!

Sending love to Bruce Willis and each and every other person affected by this disease. ❤😢

Here after Bruce Willis diagnosis. Man, this disease is heartbreaking.

What a horrible way to lose a loved one. Unimaginable, really. Strength to all those who are going through this.

My sister passed away at 57 years old from this horrible disease. It breaks my heart to think about what she went through. God bless anyone who has to go through this.

I actually worked at the facility that Mr. Johnson was a resident at and on his unit. I remember we had to put a lock on the staff refrigerator because he would go in there and eat all of our food. And I tell ya! He was one strong guy because he tore the entire lock off one day! Lol He was a handful but he was such a pleasure to be around and I love him just as much as I did my other memory care patients. He was definitely the most challenging patient I've had in my CNA career BY FAR. Seeing this brings tears to my eyes because I remember Amy and the children coming to see Mark and spend time with him. She would always leave with such a sad look on her face. Amy and Mark had such a big heart. When I had my son, Amy gifted my baby a beautiful blue blanket with planets on it. I still have it to this day and will never get rid of it. Rest In Peace, Mark. I am glad you are no longer suffering and are now able to watch over your family from heaven.

Mark's poor wife. What a beautiful woman to care for him for so long. I wish her all the best now and hope she can move on with her life ❤️

Man, this was heavy. I know mark has since passed away and my heart breaks for the loss of his life far too soon, his children & his wife. I don’t think I will ever forget this story 😔

I strongly suspect my father was in the early stages of FTD or something similar. He then got an aggressive cancer that took his life. In a way that might have been a blessing dementia is so incredibly cruel. A hug to everyone dealing with this.

This broke my heart. My mum had FTD Dementia, she was diagnosed in 2013, she died in 2016. It was so fast and progressive. The rapid change in her completely stripped my mums character & personality. My mum was such a beautiful kind caring giving person. Loved by everyone and she was my best friend in the world. When my mum lost her mobility and her speech. That was the hardest. She couldn't lift her head up and her neck just hung forward and her head would bend over. I remember I would push her everywhere in her wheelchair. It was very difficult but I didn't care as long as she got outside and continued to shopping or have some food. The first time she choked we were in a cafe, and she forgot how to swallow. They wouldn't put a tube because they said she would pull it out. She then got infections all the time. Then she got pneumonia and we slowly watched her die. All I can say this is the cruelest disease I've ever known. It's so cruel and painful at the end. To watch my mum suffer in that way literally broke me. My mum passed and three months later I got breast cancer. The trauma from being my mums carer is still with me every day. I'm so grateful for videos like this. We need to get FTD dementia out there to the world. I pray no one has to go through this. I Hope they do find a cure and soon. God bless all the people with FTD, their family and friends 🙏 ❤️

My Husband whom passed away on January 11 2016 Had Frontal Dementia, He had wore a 24 Hour Patch, he also battled Parkinson’s Disease. God was so GOOD, Al was such a KIND MAN, he was a JOY to care for never A JOB...My Al was A JOY, I would do it all over again.

This poor woman had to find an extra $7,000 every month on top of ALL this? Losing her husband, raising 4 young kids, having a full time job, paying all bills/mortgage, etc. Oh yeah plus $7,000. Absolutely obscene. She has some seriously impressive strength.

I have a friend who has this. Her whole personality changed. She divorced her husband of many years, exhibited bizarre behavior, and she's now aphasic. She gained about 200 pounds. Her kids are terrified because their grandmother also died from it. She was in a memory care facility and is now in a long-term care hospital. It's just awful.

I'm here to support Bruce by learning more about this disease.

One of the saddest things about this kind of illness is that after your loved one dies your strongest memories of them are about the last part of their lives. My father had always been a funny, creative, kind man who thought of others, but in his last years all that had gone. As his caretaker I witnessed the destruction of his personality and dealt with the negative behavior and now they are the main things I remember.

Two very powerful episodes of 60 Minutes., which has compassionately educated the world for many years.

I feel so sorry for Amy and her children. May God be with you.

Man, these stories are heartbreaking. I’m scared of losing my mind most of all, so it’s horrifying as well.

I feel so sorry for Amy and her little ones. I pray she finds peace of mind and strength when she needs it. She is a strong, good person.

My husband was diagnosed with the behavioral variant of Frontotemporal Degeneration in 2016. I advocate for him daily.

Thoughts and prayers for Bruce Willis 😢

A family member of mine was diagnosed with FTD a couple years ago and it has been a really horrible decline since. Such a nightmarish diagnosis. It’s so hard caring for someone with it but I can’t imagine what it must be like for someone actually going through it- even if they aren’t aware of what’s going on it seems like there is so much suffering. Really heartbreaking. It’s so important to educate others about this.

My wonderful neighbor back in NY was an eloquent, fun loving, witty, popular, much loved judge. When he was diagnosed, the sidewalk conversations we used to have...started to go...and I ached for that to return. John is no longer with us. I think of him so very often...

My mother in law died of this. She was a smart psychologist at one time, reduced to nothing. Very sad.

Prayers to any family that suffer from this.

My husband has FTD and was diagnosed three years after I took him to a Neurologist. He is now 80 and cannot walk without assistance, is nonverbal, incontinent and has no movement in his left arm. It is very sad to see a very active man in this condition.

This disease is heartbreaking. I lost my Mom to it. She was just 55 at diagnosis when we noticed symptoms. 6 years later, at age 61 she passed away. The decline was swift, aggravating, aggressive, and sobering.

My mom developed FTD. Her behaviors became so bad that I could not take care of her. It broke my heart and hers. The ugly truth of FTD is that it does not effect intelligence so it’s hard for family to understand.

May the medicine to treat such a brutal disease come out soon and reach every nook and corner of the world! 🙏🏻

This is heartbreaking 💔 😢

I'm here because of Wendy Williams.

This is so very sad and there's nothing anybody can do!

Absolutely heartbreaking 💔

My mom was an active athlete all her life - she developed a form of FTD called progressive supranuclear palsy which left her unable to move - not even her eyes. It’s heartbreaking. My childhood friend developed FTD

It's so sad when I see stories on FTD. I have FTD myself and as a 47 year old 5 years into it you really have no places to turn for help or support. Most places are for elderly or for alzheimers . Very few places ,help and support are for younger. Also getting diagnosed is years of test and stress. Now I am in decline. Its so sad and worrisome not knowing what's going to happen to me. Support groups I find really don't exist. I am not speaking of zoom. I can't even get on stuff like that. The physical groups aren't their for the younger people with this horrible existence. Bless everyone and their family who have or know someone who has this. It's pure evil.

I lost my sister to FTD. It took only four years from normal to death for her. She died in February before she reached her 70th birthday. But at least she had most of her life. This poor woman with her 40 year old husband. . . omg.

Sending blessings and best wishes to Bruce Willis and his family. May you be blessed with strength and surrounded by love throughout this journey.

If you can get medical assistance to end your life if you have a terminal disease, why can't you get help to end your life if you have dementia? It's absolutely crazy! I guess they need as many people as possible so they can do their research?? I am 72, I would end my life as soon as I got diagnosed with it! I can't imagine living like that and putting my family through the expense of taking care of me. It would be a living nightmare for everyone concerned. My heart goes out to anyone who has to endure this.

I had a friend who was diagnosed with this alongside ALS. Her behaviour was absolutely bizarre but she died after a few months. It was heartbreaking.

FTD is so harrowing. I think probably most individuals would rate this as something they definitely do not want.

How Amy says she misses Mark a lot, is heartbreaking…

Thank you for sharing your story.

Bruce Willis FTD diagnosis brought me here. Such a terrible disease. Prayers to Bruce and his family.

My mother was diagnosed with this in March 2023. It is really very difficult to see her in this condition. She was loving, respectful, caring and compassionate. She has always been charitable and generous to others. Now, she’s the opposite of it all. I sometimes wonder where did the good karma go? She’s mean, she calls me names and uses degrading words and sometimes hits or scratches my arm. It is very difficult living with her like this. Just hoping and praying for strength at this point. 😢 💔

What amazing episode! Thank You

I'm praying for Bruce Willis and Wendy Williams as well as anyone else who's suffering. God Bless.

I had Brain Cancer, Surgery & Radiation & believe me, it has been a ruff road so in some ways I can relate. I am the only one that is still alive (BCancer) & I'm in an old people's home... I'm 57

My mother showed no sign of traditional dementia but living alone we noticed that there were reminder post it notes all over the house. Brain disease is the worst. Frustrating and painful to both patient and family. This country needs national health!

I live in Australia and have recently been diagnosed with FTD. Thank you for this report. They don't seem as knowledgeable here and it's been wonderful to watch information on American tv.

Heartbreaking !!

So sorry to watch and listen to this testimonies, hope medicine will find a cure and my best wishes to the families keep fighting

Thoughts Love and Payers for Bruce and his family ❤

Bruce Willis has just been diagnosed with this illness, his family said. How very sad😔 . This is a terrible affliction for everyone involved.

I lost my mother to Alzheimers decades ago. As I understand it, Alzheimers is also always fatal. Mom's progression took a bit over five years. Some of her symptoms resemble those of Mark Johnson (as covered here). For anyone who has had someone special progressively lose their memory and basic mental capacities over the course of years, they will know why the experience is sometimes called 'the long goodbye'. You continue to meet with, and speak to them for years. But in truth, they had 'checked out' long before the final 'GoodBye'.

Prayers to all who suffer.

Wow, I felt so sad about her.

My mother was diagnosed with Alzheimer's at the age of 66, and she has an atypical form of the disease that makes it hard for her to remember names and nowadays often other words as well, so in that respect her symptoms are quite alike with FTD. In my mom's case her episodic memory will be affected much slower than it usually does in Alzheimer's. Her diagnosis was confirmed with an MRI scan, so it is very important to get proper medical examination and diagnosis early on in order to discern what's behind the symptoms. When it comes to Alzheimer's there is growing body of evidence that you can affect the course of the disease by lifestyle intervention, medication and supplements (e.g. Souvenaid), so early intervention is crucial. I truly hope more funding would be given for academic study of the many forms of dementias as pharmaceutical industry hasn't really come up with promising medications despite all money that has been poured in it.

Blessings and Prayers for Our Actor BRUCE WILLIS and his family! WE LOVE OUR ICONIC ACTOR BRUCE WILLIS!

Well she’s talking pretty well compared to my girlfriend who has it. Who has FTD. Now she can’t speak. She can’t walk. And she lost interest in everything, except food. Mostly sweets Coke, And french fries etc. so I really hope and pray she doesn’t end up like my girlfriend who was so independent and could dance great. It was very intelligent. That’s all gone. But I still go see her. And be with her. And tell her I love her and hold her hand.❤️

I feel very sad for families that go thru this when someone is very young, I thank God that my husband’s dementia waited until he was 79

This is a sad story! I wish there was a way that this disease FTD could be detected. Thank you for this great invaluable information!

I'm shook. This is heartbreaking.

extremely painful

I feel you. My daughter is only 31 years old and has alzheimer's and seizures frontal lobe. It's a very hard road, but we all can do it. God doesn't give us things we can't handle. Bless you all 🙏

God bless and be with you sweetie.

I am very glad that lady stayed with her husband she didn't break up with him my mom would have broke up with him just like after I got diagnosed with epilepsy/seizures she put me in foster care and my dad wouldn't allow that so she broke up with him and he raised me since I was 6years old and diagnosed with epilepsy/seizures

With learning of this due to Bruce Willis, I wonder how many more will be diagnosed since we’re all getting educated, so sad for Bruce and family .

Heart breaking for Amy’s story 💔

So sad about the father with the young family. And his wife.

This is devastating.

Heartbreaking. 💔

this is so scary and sad

I can't believe that it is $7,000 a month. Coming from a speechless Australian. I just prayer that the pain has eased some. Much love and prayers to all of them.

$7,000 a month!! That poor woman...

Poor Wendy 😢

Who is here because of the Bruce ?

Young mother Amy Johnson of Windom Minnesota needs help as she shoulders a $7000.00 a month bill for her disabled by frontal lobe dementia 40 yr old husband's facility bill; this is financially impossible for her to sustain for 5 more years and also have to work constantly to provide for her life alone w her small children. Please help her and her four very young boys.

I'm here after learning of Bruce Willis's diagnosis hoping to learn more

We received the diagnosis that my mother had FTD after we took her to the emergency room for what we thought was a mental health crisis. The doctor told us it was the worst case he had ever seen. We thought she was suffering from severe anxiety and depression. She ended up dying a few days after we were given the news. Her health was failing and we had to make the decision to continue care or choose comfort care instead. Seeing this, I am glad we made the decision that we did. At least she was spared further suffering. The scary part is that there can be a genetic component to this. I don't worry about myself, but I would hate to think that my family might have to deal with this one day.

Really sad Bruce Willis will have to get through this, I hope somehow he gets well and healthy again.

My Mom died 11 years ago from frontotemperal lobe dementia. She was 63 at death and 50 at diagnosis. She had aphasia and getting her to talk more than 2 words was hard.

It’s sad it’s like having amnesia all your memories are erased.you don’t even no what makes you happy anymore

After coming to my mom's to relocate her husband to a care home I realized mom couldn't function alone. I moved to center Georgia several hours from home over 14 months ago. I know it's some form of dementia. We have spoken to our doctor about testing to define the type only to realize.....what for? She takes a "memory pill" but who knows if it's of benefit. The doctors and pharmacist agree that no matter the type, no real treatment plan. We got busy, walking two miles per morning. I took over cooking, paying bills, making appointments etc. Back in February covid pneumonia set her back. Well the lord spared her, we started our exercise regime but now 1 1/2 miles is a struggle. Mom's 78 and I commend her effort and exertion seems to help fight the dementia back. Even though I don't feel productive and am penniless, this has been such the blessing, caring for the sweet girl. Some days the blessing is hard to see thru my tears but they do exist. I may not be able to provide care once she slips further away and unable use the restroom alone? I worry that my never quit, marine corps ethos may keep me seeking better care later on. I guess I would be forced to sign over her home and car to the government in exchange for the care. It's a shame how the dollar keeps entering into the conversation. This disease that's killing her has laid waste to my personal future but I realize I would have had no chance at a future without her raising me. The Lord hasn't brought us this far to put us down and forget our needs. Please keep us in you're prayers. She loves and appreciates me greatly, but I feel like the old man son, interested on the SSI check arrival. My Ambition is gone.

I feel so bad for that lady it has to be devastating to have your best friend who u love not recognize u any more

Just lost someone to this. She was not herself in the end. She was completely out of it. She had to be under 24-7 care and it ran the entire family down with stressing about who was coming and sitting with Granny. We tried to keep her out of the nursing home until it wasn't possible. She was falling and gets injured. She was alsocdoqbetic and she would hit people who tried to help or check her insulin levels. She was an amazing person who loves Jesus and did what was right for anyone she came across. She didn't care about things or money. She loved her family and cooking for them. Once she had to go into a nursing home they placed her into a lockdown unit and medicated her so all she would do is sleep and wake up be mean to everyone. She would use the bathroom on herself then spread that all over her room herself and other patients rooms in the unit she couod get to. She constantly teied to escape and she alsp stole other patients belongings. It broke me having to watch this unfold and i would not wish it on my worst enemy.

i ACHE FOR WENDY WILLIAMS

SO SAD...

This is exactly why euthanasia should be a right. What is the point of living as a human shell? This lady is basically forced to pay 7,000 a month to let a facility over feed her husband? What is she doesn't have this money? Just leave the human shell on the street?

I pray to god/Allah/Buddha..et that we find a cure for this and cancer soon. This was so heartbreaking to watch

I'm going through the same thing. It's been difficult to get a diagnosis for my husband. His entire personality changed so much it's horrible. He lost so many jobs and has not worked for 3 yrs.

Prayers up to Bruce Willis and his family

I really hope people find a cure or a way to stop dementia

As wonderful as life is we all have our crosses to carry...this is a tough one

I took care of a patient that showed these symptoms and behavior. His daughter , her husband keep her at home but it was so difficult a lot of times. She died on 2015 .

My husband is the exact same as Mark .. didn't think there was anything wrong with him abd didn't care.

When’s the last time you heard of any cure for a disease? Where is all the money going? The medical establishment is corrupt.

I really like this channel

I am here to support Carol and learn more of this horrible disease.

God bless Amy.

it’s crazy how quickly this onsets. imagine… one day, you wake up and you’re suddenly gone. physically present but mentally poofed out of existence; a shell of your former self.