How I’m Living My Best Life with Multiple Sclerosis | Robin Brockelsby | TEDxUniversityofNevada

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TEDx Talks

TEDx Talks

4 роки тому

Does being diagnosed with an incurable disease mean you’re fighting a losing battle? Not according to Robin Brockelsby, who after 46 years of perfect health was diagnosed with an incurable disease called multiple sclerosis. In this compelling, informative and uplifting talk she shares what multiple sclerosis is, how it feels to experience a life-changing medical diagnosis and the tools she is using to fight back against her chronic disease with strength and purpose. Robin Brockelsby is an Entrepreneur, Speaker, Fitness Enthusiast, and proud wife and mom to 3 teenagers. As Founder of Embrace the PATH (www.embracethepath.com) & Past President of Crisis Support Services of Nevada, Robin believes passionately in inspiring and empowering others to succeed by helping them to conquering their challenges & fears. Following her 2018 TEDx talk on overcoming fear, Robin was featured by Yahoo Entertainment & Lifestyle in their “Inspired By” campaign. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at www.ted.com/tedx

КОМЕНТАРІ: 1 000
@jaemonroe1
@jaemonroe1 2 роки тому
I was just diagnosed today and I’m trying to cope so prayers are welcomed.
@sonamkosandal8233
@sonamkosandal8233 2 роки тому
Don't worry, it'll be all fine;)
@jaemonroe1
@jaemonroe1 2 роки тому
@@sonamkosandal8233 thank you 😊♥️
@YugiohUndercoverIndonesia
@YugiohUndercoverIndonesia 2 роки тому
You'll be fine.
@failuremoon3063
@failuremoon3063 2 роки тому
I was diagnosed a week ago and we’ll both be fine 💪🏼
@ashleighmartinez8448
@ashleighmartinez8448 2 роки тому
Stay strong, you've got this! I was diagnosed at 21 and I'm now 11 years into this journey. There is hope. Keep your chin up and focus on all the good things that come your way. Prayers! Xoxo
@bingbong7607
@bingbong7607 Рік тому
I was diagnosed in 2018, my entire right side was seized up and unusable, balance was thrown off and could hardly stand. With physical therapy, modern medicine and dietary change I was able to get back 100 percent health. Doctors thought I would only regain around 50 percent strength. A message to all MS'ers stay positive, don't get down on yourself. STOP eating processed foods. START to meditate and exercise daily. This disease doesn't make you weaker than the average person, it actually makes you much stronger, and can give you a much deeper appreciation for life.
@juliamckay5032
@juliamckay5032 Рік тому
THIS.
@mary-vy3mo
@mary-vy3mo 7 місяців тому
everyone recovers at beginng.. you still have ms...spms hits at age 40-50..
@Sbannmarie298
@Sbannmarie298 3 місяці тому
agreed
@jamesm2569
@jamesm2569 3 дні тому
Thank you for this 🙏
@cheriebinns6610
@cheriebinns6610 4 роки тому
Love this! I have had MS for 45 years now and am back at work in my late 60s because I can! We need these success stories with the emphasis on life style changes.
@jaconnajackson1012
@jaconnajackson1012 3 роки тому
Beautiful!!!!
@joannbarthold3032
@joannbarthold3032 3 роки тому
Please watch Dr Wahls ted talk if you haven’t already. God bless
@lindamotupalli8998
@lindamotupalli8998 3 роки тому
Cherie Binns a
@60sChildBorninthe80s
@60sChildBorninthe80s 3 роки тому
Amen!
@lisahickman5926
@lisahickman5926 3 роки тому
@Robin Brockelsby Thank you for your story. It help me.
@samarsafavi7403
@samarsafavi7403 3 роки тому
I got MS when I was 15, at first I was so scared but and now I am 23 and feel good because I believe nothing happens without reason. God never gives you something which you cannot handle. God bless you all.
@CarlosHernandez-tg9ct
@CarlosHernandez-tg9ct 3 роки тому
Amen! Never give up!
@camrynmcgough2612
@camrynmcgough2612 2 роки тому
I was diagnosed with ms when I was 15 too and I'm also 22 now, so I completely understand your struggle..
@samarsafavi7403
@samarsafavi7403 2 роки тому
@@camrynmcgough2612 how are you feeling now? i actually have not talked to anyone who can understand me!
@camrynmcgough2612
@camrynmcgough2612 2 роки тому
@@samarsafavi7403 im feeling good! some days are definitely better than others (especially with the heat) but I try to stay positive and get plenty of rest. you're more than welcome to message me on Instagram too @camryn_mcgough if you wanna talk more!
@sonamkosandal8233
@sonamkosandal8233 2 роки тому
I had Ms when I was 16, now I'm 19 and I'm doing well
@iristorres2704
@iristorres2704 3 роки тому
My mom was diagnosed with multiple sclerosis in christmas of 2011, within a week. She felt some of those symptoms, the tingling in one of her legs and the loss of sensibility in one of her hands. She always felt something wrong with her hand but the doctor said it was nothing... For years! In 2011 she felt those symptoms intensified, so me and my brothers made her go to hospital because it wasn't very usual. She was diagnosed with multiple sclerosis and came out of hospital in 24th of december. It was a very difficult journey for her. She had to change her treatments for two or three times because her disease was getting worse after the flare-ups. She stopped working because my father thought it was better that way and because that option was possible (fortunately my father has a stable job). Today she is a very healthy and strong woman, she faces life with an huge and strong smile. She goes almost everyday in long walks, she is an excellent and active grandmother, she eats very healthy and, most important, she tries to run away from stress and big emotional changes. I'm very proud of her. She's the person I love the most in my life. Because of that, now I'm studying Biomedical Sciences and I want to take my PhD in Neuroscience and understand better this disease, because my mother always lived for me and always gave me everything, so if there's a chance I can try to make up for everything she has done for me, I will sure do it. I wish the best of luck and very strenght to every person with this disease, and remember, there will always be someone in labs and hospitals trying to find a reason why, a better treatment, a cure... We are out there! :)
@bifura-san2120
@bifura-san2120 2 роки тому
Thank you very much u really made my day :)
@noexcuseschristians
@noexcuseschristians 2 роки тому
You are such a thoughtful daughter. I'm sure your mother is blessed to have you as a daughter 🙂
@iristorres2704
@iristorres2704 2 роки тому
@@bifura-san2120 I'm glad I did :)
@iristorres2704
@iristorres2704 2 роки тому
@@noexcuseschristians Thank you for the kind words :)
@taittinger1092
@taittinger1092 Рік тому
@@bifura-san2120 I had my Stem Cell Transplant at 53. I am in Remission & Grateful. Your life is Definitely not over!!! Eat Well, Sleep well, DREAM Big. Love, Janet. My Son (21) has been with me through the Stem Cell Transplant. Just for me, "it was easy", I was grateful for this Option for all of us to review.
@kotrynakrupauskaite7939
@kotrynakrupauskaite7939 3 роки тому
I feel like I might cry. Battling MS is hard and unpredictable, sometimes it gets me all in tears and asking "why me?". It is hard even trying to explain why I'm so tired, why I sometimes walk without coordination and why sometimes I don't really feel my left hand. You know what? I'm tired, but I'm alive. I'm walking weird but I'm walking. I sometimes don't feel my hand but I'm capable of moving it. Not gonna let this defeat me, MS is my new bestie and I'm more inspired to live and appreciate my best life than ever, as mentioned by amazing speaker.
@Ron-zu1sk
@Ron-zu1sk 3 роки тому
Preach...When was your diagnosis?
@joannbarthold3032
@joannbarthold3032 3 роки тому
Please watch Dr Wahls ted talk. Changing her diet to the necessary foods and nutrients she needed made all the difference. You have to see her testimony. I sincerely wish you all the best
@joannbarthold3032
@joannbarthold3032 3 роки тому
Dawn Girl, that’s fantastic I’m so happy for you!! That’s my hope for anyone battling a physical condition to make food and exercise modifications not just accept a fate of health decline.
@michelletodd4893
@michelletodd4893 3 роки тому
I completely understand. I am the same way. Sometimes these video's do a disservice and people think, it's easy and so you get tired (no fatigue is not tired, i shut down around 5pm each day and sleep for 2 hours. I can't fight it and it doesn't matter where I am). So your feet and/or hands tingle a little. (No they tingle a lot and feeling like fire ice picks are in there 24/7). So you walk with a cane (no I should be in a wheelchair, but refuse). Also we have swallowing problems, losing control of our tongue and this leads to speech problems). So you are a little forgetful. We all are (No we have cognotive deficiencies and even though you have picked up your daughter at the bus stop at 2pm everyday for 6 years, now you have 3 alarms to remind you. Plus your husband calls. Your husband says get eggs bacon and milk. Also bread. You just remember bread.) You live average life span No.most I know pass young with heart disease or respitory problems because our muscles weaken over time.). Yes you can live a happy life, but it's work, everyday is a struggle for some of us. I am 50 and in worse condition than my 72 year-old mom.
@thedikshantdethe
@thedikshantdethe 3 роки тому
Please tell me process of treatment my son is also suffering from this desease from last 4years he is under treatment but not cure the profile picture is of my son please help us
@JKforUA
@JKforUA Рік тому
I was dxed in 2000 (the Friday before my spring break. Yeah 🤦). There were 3 drugs for MS at that time. I go to a neurologist now who is a world renowned specialist in MS (his mother had it bad, and so he made it his passion). Last time I saw him, he said there are now 30 something treatments for MS, with more on the way. He also said that within my lifetime I will see treatments that reverse the damage. Then the next time I saw him, he said, "remember how I told you you'd see this within your lifetime? Now it's more within a decade". So this isn't a life ending disease. Help is on the way.
@jazzlall3971
@jazzlall3971 6 місяців тому
This made me cry. I can see how I really want help.
@luisguerra1975
@luisguerra1975 16 днів тому
YES! So looking forward to reversing the damage that MS has caused.
@MP-up8zl
@MP-up8zl 3 роки тому
Newly diagnosed and this is exactly what I needed to see.
@rachelskultety9041
@rachelskultety9041 3 роки тому
Same here, you are not alone 🧡
@guillermotorresbravo4948
@guillermotorresbravo4948 3 роки тому
Not alone!! I am 34 and I'm suffering this disease since I was 3. I know everything about MS, so, if you have doubts or something I can help, please write me.
@danieldiaz4404
@danieldiaz4404 3 роки тому
Same here , I got diagnosed in April 2020
@michaeldixon1982
@michaeldixon1982 3 роки тому
Guillermo Torres Bravo I think I have ms
@sajanshrestha3542
@sajanshrestha3542 3 роки тому
Guillermo Torres Bravo what age did you start ms treatment?
@tvkelly3
@tvkelly3 Рік тому
I think the toughest part of MS, for me, is not knowing what the future holds. And it makes me question everything from the past.
@mikalookysmakeup
@mikalookysmakeup 3 роки тому
“and you still did this to me” i’m crying... acceptance is one of the hardest parts of any illness. she’s amazing for talking about this.
@tatianadelarosa2251
@tatianadelarosa2251 2 роки тому
Me too 😭😭
@juliamckay5032
@juliamckay5032 Рік тому
It took a long time before I stopped feeling like my body was betraying me and begin to treat it as a precious friend in my journey to live well with MS.
@down-to-earth-mystery-school
@down-to-earth-mystery-school 3 місяці тому
I’m in the anger stage right now, it’s pretty intense, but I know it will pass
@luisguerra1975
@luisguerra1975 16 днів тому
@@down-to-earth-mystery-school yes it will. don't give up. Many of us have gone through it and you will get through it too...
@verafreebourn9152
@verafreebourn9152 Рік тому
I only had 19 years of young health. I was married at 18 and diagnosed at 6 months after marriage. Was told do not have children, just raising them will take a toll on you! I was young and stubborn enough to fight back. I m now 62 and still fighting with Ocrevus and the help of my family Thank you for the story of your experience.
@stephanastasiadis6214
@stephanastasiadis6214 Рік тому
Did you end up having kids ? ♥️
@ericajollymackenzie2382
@ericajollymackenzie2382 8 місяців тому
Her opening minutes was the last three years of my life, i'm trying to be ok with this.
@ishikagupta8920
@ishikagupta8920 3 роки тому
So glad I found this talk. Diagnosed with MS last year. I am 28 now, a CA finalist, it still kills me to think that i m not able to walk properly. My condition is progressive in nature though I have not given up. I am positive each day n believe me it is no easy. But i m not giving up.
@JTRipper
@JTRipper 3 роки тому
I know some tips to halt the progression. Let's talk.
@Everythingishere914
@Everythingishere914 2 роки тому
Just be positive.....aap jitna positive rhogi es bimari se aap utni he ache trh fight kr logi...this is my personal experience....trust me...
@Lexillios
@Lexillios 2 роки тому
I'm your age In feb i had optic neuritis and I'm still on steroid treatment. I did a blood test today that will determine if i have this or not and I'm very scared as i only have a father who's 79 years old. I hope I'll be physically able to have a normal job at least.
@babaipuspendu752
@babaipuspendu752 2 роки тому
How are you are you Indian?
@taittinger1092
@taittinger1092 Рік тому
I had my Stem Cell Transplant at 53. I am in Remission & Grateful. Your life is Definitely not over!!! Eat Well, Sleep well, DREAM Big. Love, Janet. My Son (21) has been with me through the Stem Cell Transplant. Just for me, "it was easy", I was grateful for this Option for all of us to review.
@alexr6690
@alexr6690 9 місяців тому
I was diagnosed with multiple sclerosis in 2018. I was 21 years old and in that year I had lost a family member and went through my first heart break. For the past 3 and a half years I have been a Latin dancer which has been a passion for a long time. I have performed and competed on stage for the past 2 years. Last year I tied for second place for my salsa pro/am freestyle. I also won my bachata pro/am freestyle!
@baileyemal7785
@baileyemal7785 3 роки тому
I was diagnosed at 18, which was just 5 years ago. I find this talk very comforting to me. It reminds me that just because I have MS, it doesn't mean my life is over. Thank you so much for your inspiring words ❤
@sarahplain6287
@sarahplain6287 3 роки тому
Special hug x My aunt had it for 5years, until she apply herbal remedy for her cure Indeed herbal medicine is the best
@laurapoling5539
@laurapoling5539 2 роки тому
@@sarahplain6287 What herbs did she use?
@sarahplain6287
@sarahplain6287 2 роки тому
@@laurapoling5539 herbal remedy from Dr hadi
@sarahplain6287
@sarahplain6287 2 роки тому
@@laurapoling5539 Moringa herbs
@taittinger1092
@taittinger1092 Рік тому
Bailey, I had my Stem Cell Transplant at 53. I am in Remission & Grateful. Your life is Definitely not over!!! Eat Well, Sleep well, DREAM Big. Love, Janet. My Son (21) has been with me through the Stem Cell Transplant. Just for me, "it was easy", I was grateful for this Option for all of us to review.
@annecrestani9218
@annecrestani9218 8 місяців тому
My 32 year old daughter was diagnosed with MS 2 weeks ago. We are still in shock and I feel completely devastated for her. However, we are trying to stay positive and optimistic but geez its really tough. Luckily we live in Australia and most of her medical care is covered through Medicare and her medications will also be covered under our country's PBS. I do really feel for our friends in the US who are not adequately covered through their private insurance - very unfair. We are trying to take each day at a time....but as her Mum, I can't help but be very worried about her future. Wishing you all the best of health and happiness.
@Neginrafienia
@Neginrafienia 3 роки тому
So touching. I cried my eyes out when you were talking about your pains. I recently got diagnosed with multiple sclerosis and i can say I'm going through a lot these days. Wishing everyone with multiple sclerosis a healthy and easy life.
@taittinger1092
@taittinger1092 Рік тому
I had my Stem Cell Transplant at 53. I am in Remission & Grateful. Your life is Definitely not over!!! Eat Well, Sleep well, DREAM Big. Love, Janet. My Son (21) has been with me through the Stem Cell Transplant. Just for me, "it was easy", I was grateful for this Option for all of us to review.
@juliamckay5032
@juliamckay5032 Рік тому
back at 'cha. Hang in there. You will find your way.
@flynfresh3166
@flynfresh3166 Рік тому
my brother was diagnosed during covid, he lost his job, his fiance left him. I want to help him get back on his feet and be there.
@down-to-earth-mystery-school
@down-to-earth-mystery-school 3 місяці тому
I’m so sorry for his loss, but he deserves a loving and supportive partner. It makes all the difference!
@kibrahymi
@kibrahymi 6 місяців тому
I got it when I was 17 and I was sad at first but then Allah guided me.
@citizenk8125
@citizenk8125 3 роки тому
Very inspiring, so added it to my fav's... I, was diagnosed with RRMS 15 years ago I'm now 45 and at the age of 30 I felt my whole world come crashing down but just like Robin, I had to accept my fate & what was now my new norm & granted "it's been tough" but I've "changed my attitude" towards so many things & kept the faith alive, and I keep on going through all adversity... Coz once you're defeated mentally, you're defeated spiritually & ultimately physically even without the aid of "chronic illness!" So I say that to say this... Be strong all my newly diagnosed MS warriors & stay positive in your mindset & don't allow the challenges you face define you it's not the end; far from it. And to my veteran MS warriors, keep on keeping on... God Bless you all peeps... Love & light!!!!
@joannbarthold3032
@joannbarthold3032 3 роки тому
Dr Wahls ted talk is amazing on MS
@taittinger1092
@taittinger1092 Рік тому
I had my Stem Cell Transplant at 53. I am in Remission & Grateful. Your life is Definitely not over!!! Eat Well, Sleep well, DREAM Big. Love, Janet. My Son (21) has been with me through the Stem Cell Transplant. Just for me, "it was easy", I was grateful for this Option for all of us to review.
@fatalradius
@fatalradius 5 місяців тому
Great talk! I am 38 and have had RRMS since I was 21, but officially diagnosed at 27. It’s a roller coaster ride and still is. I was on Tecfidera from the start, and currently taking Vumerity. I also may be switching over to one of the newer infusion drugs in the near future. I am blessed to still be athletic, but there are times I have my days where I am weak and my brain fog creeps up. If you are newly diagnosed, do NOT ignore treatment. It’s one of those illnesses where you need to incorporate western medicine, along with a good diet and exercise. Those three go hand in hand, and if you follow up with them, you will be fine 😊. I am confident that within the next 10 years we’ll have better medicine to slow it down more or even halt it. I hope scientists find a DMT that only nukes problematic B cells instead of all of our B cells 😅
@j.m.p8051
@j.m.p8051 3 роки тому
A huge embarrassment is doing a side step while walking. The tag line is true, "we're not drunk, we have MS" applies. I have had to say that a few times in the last 20 years!
@taittinger1092
@taittinger1092 Рік тому
I had my Stem Cell Transplant at 53. I am in Remission & Grateful. Your life is Definitely not over!!! Eat Well, Sleep well, DREAM Big. Love, Janet. My Son (21) has been with me through the Stem Cell Transplant. Just for me, "it was easy", I was grateful for this Option for all of us to review.
@debradunbar6160
@debradunbar6160 7 місяців тому
Was so proud I made it to 30 minutes on the elliptical … then the next day at 30 minutes my legs collapsed and three men had to help me up. Of course I cried out of embarrassment but I should have laughed. I did 30 minutes two days in a row. The elliptical is a replacement for not being able to walk without a limp. It’s a godsend.
@artizen9466
@artizen9466 2 роки тому
I was diagnosed with MS when i was 12 years old. Im 22 soon 23. And my first symptom was central vision blindness. I was very young and my third attack was very scary. It took everything away from me. MS made me sacrifice things I didn’t want to from making friends, talking walking or feeling like a normal human. It caused Bipolar disorder and because of its immune system killing itself ms caused other diseases too. To this day, im suffering but im glad i can see again.
@taittinger1092
@taittinger1092 Рік тому
I had my Stem Cell Transplant at 53. I am in Remission & Grateful. Your life is Definitely not over!!! Eat Well, Sleep well, DREAM Big. Love, Janet. My Son (21) has been with me through the Stem Cell Transplant. Just for me, "it was easy", I was grateful for this Option for all of us to review.
@stevewilliams4842
@stevewilliams4842 Рік тому
So sorry to hear that..how are you doing now?
@user-kn6qx9wj9b
@user-kn6qx9wj9b Рік тому
Try avoiding inflammatory foods. Do a food allergy check and stop eating foods that cause you inflammation. And pray well. God is a healer.
@Terricharmedackles
@Terricharmedackles Рік тому
I am in the process of getting an MS diagnosis. I’m so lucky to be in the UK where treatment is free. I feel for people who have to stop at medical bills.
@grenstickyflap
@grenstickyflap Рік тому
I have been diagnosed for 10 years this year, we are lucky that we have the NHS. I really believe that a positive state of mind is half the battle. I wish you all the best with it.
@nooralfajr1775
@nooralfajr1775 8 місяців тому
The problem is not how and who pays the bills . The problem is medicines are useless and no cure anyone gets. A small note, all ms patients who are on wheelchairs are taking medicine.
@down-to-earth-mystery-school
@down-to-earth-mystery-school 3 місяці тому
I am a U.S. citizen and I’ve had to save up for six months to afford the initial MRI which isn’t covered by insurance. And, it’s been five months since I applied for disability benefits, still waiting to hear!
@hawaiihaha09
@hawaiihaha09 4 роки тому
Great presentation. I found out I had MS at 51. I asked not Why Me but rather Why Now. Weren’t we supposed to retire and have it easier? Instead of starting out on a new battle at 51. Then I flipped to gratitude. I Had Had 51 healthy years with career, travel, family etc. Thank you for explaining the battle and the mental strength needed to stay strong.
@kasiowelove1
@kasiowelove1 3 роки тому
My Mum was diagnosed last year at the age of 52. Thank you for this attitude, it inspires!
@jamesr.g.2320
@jamesr.g.2320 3 роки тому
You’ve lived 51 years of your life.
@rebeccahenly4592
@rebeccahenly4592 3 роки тому
I too was diagnosed at 51! Looking back I had had the stress of the loss of my mother, a divorce and all that goes with it, and hormone changes. I also am so grateful to have been an active person raising 2 children and having a tremendous career as a physical therapist. It’s not always easy but I try to see the good and am thankful for love and life.
@hr9278
@hr9278 3 роки тому
You are Lucky. I had it at 18 years old and i had To build my life and my career with it.
@taittinger1092
@taittinger1092 Рік тому
I had my Stem Cell Transplant at 53. I am in Remission & Grateful. Your life is Definitely not over!!! Eat Well, Sleep well, DREAM Big. Love, Janet. My Son (21) has been with me through the Stem Cell Transplant. Just for me, "it was easy", I was grateful for this Option for all of us to review.
@casillas2298
@casillas2298 3 роки тому
I got diagnosed 2 weeks after my 20th birthday. It’s been 2 years and I’m still grieving every day.
@Leo__4
@Leo__4 3 роки тому
Wanna talk about it? PWMS here too
@karlaschmid5676
@karlaschmid5676 3 роки тому
🙏 praying for you❤️
@natalyaryzh4008
@natalyaryzh4008 3 роки тому
I got diagnosed when I was 18, 10 years ago) And I keep going, I'm still in good condition (EDSS = 1.0). Everything is going to be great, live your life and feel positive!
@lololola1835
@lololola1835 3 роки тому
SAME!
@trendsintheends7615
@trendsintheends7615 3 роки тому
Anyone have the fear of other people watching you limp and so you walk even worse? 😔
@cappuccinogirl00
@cappuccinogirl00 2 роки тому
I recently started working in neurology department, and meeting patients with MS made me realize how much I should appreciate life and everyday blessings like being able to run. Big respect for all you guys, and never give up on yourself! Keep fighting this battle and enjoy as much as you can, because I promise, you aren't alone on this journey. ❤️
@CarolCreates
@CarolCreates Рік тому
Hey 👋🏾 I tell people this every time I’m asked what’s wrong (as I use a stick). I tell them they have their health and not to take it for granted 😊
@amandaolivier1351
@amandaolivier1351 Рік тому
I was diagnosed Jan 2021, with RRMS, EDSS 1. By September 2021 I declined to EDSS 3.5. I thought my world was over.. I had numbness in my hands, legs, nausea 24/7, bouts of dizziness, the MS Hug, lower back pain, couldn't make it past a bathroom and the list goes on. I was fortunate that my mobility wasn't impacted. I found out about HSCT and went in October 2021 in Monterrey, Mexico to get it.. unfortunately, this treatment is still stuck in clinical trials phase 3 in the states. It has an estimated ~85% chance to halt RRMS. My last MRIs showed no new activity! I work 40+ hours a week and I only take vitamin D once weekly. I have enough energy to cook dinner when I get home, too! I wish this was offered as a frontline treatment for everyone with MS.... I am forever grateful for my second chance at life. Best wishes to everyone battling this horrific disease.
@down-to-earth-mystery-school
@down-to-earth-mystery-school 3 місяці тому
Thank you for sharing, I live in Mexico and will check it out
@timmywow89
@timmywow89 2 роки тому
i hurt so many people with my attude and mood swings i didnt understand that ms was making me be someone that was very unlikable, but i recognize it now and know how to handle my self better by resting properly exercising and eating healthy foods
@leigh5745
@leigh5745 2 роки тому
I am 46 and currently amid testing to see if my issues are MS. Love this talk as tears run down my face. 💚
@jstephens2818
@jstephens2818 Рік тому
Truly amazing! My wife was diagnosed in 2009.Thank you for sharing your story!
@stevenharvey2941
@stevenharvey2941 2 роки тому
you are my hero. I have watched this over 40 times. f ms. you go girl. all power to you.
@taittinger1092
@taittinger1092 Рік тому
I had my Stem Cell Transplant at 53. I am in Remission & Grateful. Your life is Definitely not over!!! Eat Well, Sleep well, DREAM Big. Love, Janet. My Son (21) has been with me through the Stem Cell Transplant. Just for me, "it was easy", I was grateful for this Option for all of us to review.
@__Wanderer
@__Wanderer Рік тому
Diagnosed 3 months ago. Feels like my prior self has died. I am still grieving the loss of who I was an am fearful of my future. I am still young and already blind in one eye. This disease is horrific.
@down-to-earth-mystery-school
@down-to-earth-mystery-school 3 місяці тому
You are loved and not alone💜
@BretSimmons
@BretSimmons 4 роки тому
Great job, Robin! Very proud of you
@hookerhawk22
@hookerhawk22 2 роки тому
I needed this, thank you 😊
@kkcamp02
@kkcamp02 3 роки тому
This was so good. Thank you for your honesty.
@rabrojonel
@rabrojonel 2 роки тому
My sister may have MS - she's in the process of seeking a diagnosis. This was helpful to understand more about the disease. Thanks!
@raventyson
@raventyson 3 роки тому
Tremendous inspiration!
@WalkofLifewithSumit
@WalkofLifewithSumit 3 роки тому
Thank you for sharing your MS journey...you have inspired me to tell my story in front of everyone and honestly I feel very good. This definitely has given me the confidence that I needed and made me capable enough to start my own channel, I wanna grow with you all and proud to call myself a MS warrior !!
@MSWarriorAlana
@MSWarriorAlana 3 роки тому
Your journey sounds similar to how mine started, thank you for sharing your story it was inspiring 🧡
@rlrbates
@rlrbates 3 роки тому
I was diagnosed 1yr ago. It sucks that we have this. So thankful for you speaking, encouraging, and letting me know I'm not alone!!!
@Marisolms96
@Marisolms96 3 роки тому
This is amazing💖
@Jerry-nf5og
@Jerry-nf5og 3 роки тому
I can relate so much I love hearing the ms battle bc Its also my battle she is great🙏
@multiplesclerosistheowners2339
@multiplesclerosistheowners2339 3 роки тому
Thank you for this! So helpful for me and I'm sure for others.
@15ishwithJaimeandConnie
@15ishwithJaimeandConnie 4 роки тому
You are a super star. Thank you for sharing this much important story!! Love you, lady!!
@joegenung9674
@joegenung9674 4 роки тому
Nice work Champ!
@ellierosebush1745
@ellierosebush1745 4 роки тому
Robin, this is beautiful. Your are a great spokesperson for those with our disease - Thank you
@alrightwithms845
@alrightwithms845 3 роки тому
Thanks for sharing this video. Yes I’m the same. Being positive and grateful is the tonic for me! Best wishes to all.🤗 Nic from Australia 🇦🇺
@megany0510
@megany0510 3 роки тому
I was diagnosed a little over 18 years ago but my health has gone downhill VERY rapidly in the last 3 years. I can honestly say that this is the first talk that I have seen that makes me feel better. I'm lucky to have a wonderful husband and family that would do anything for me. However, I still get depressed about everything I have to deal with so I'm very glad I listened to this video!
@kishaperry8024
@kishaperry8024 3 роки тому
Love her she makes you realize ❤ 💕
@tonyawest_
@tonyawest_ 2 роки тому
Loved this, I was diagnosed last November.
@stephanieboddy6341
@stephanieboddy6341 3 роки тому
I'm 29 years old and have been living with MS since I was 23. I've been struggling more so recently because I'm wanting to start a family and I'm worried about starting medication. We are in no position to start a family at the moment and I'm worried about going on a medication to have to get off of it in a year or so. I've also been extremely scared about my health. I haven't had an episode since my first diagnosis but I feel like a ticking time bomb. Sorry for the rant, I just wanted to say you are a huge inspiration to me. Your positivity is exactly what I needed. Thank you so much for doing this TedTalk.
@yontabir172
@yontabir172 3 роки тому
You can live a Healthy and Successful life. Go Strong
@myown2101
@myown2101 3 роки тому
Meds don't work. The only way to success is nutritional therapy and lifestyle change. Good luck on your journey!
@lindalear5000
@lindalear5000 3 роки тому
Please PLEASE I hope that you see this reply. Look up Dr Aaron Boster, Boster Center in Columbus, Ohio. Look at his UTube videos! I have this disease 10 yrs in, You need an aggressive informed, passionate doctor advocate along with you on this journey. See all his videos. L
@myown2101
@myown2101 2 роки тому
@@chris1960 There is absolutely no data that shows the MS drugs slow down the progression of the disease or improve the quality of life. I base my opinion on research data that I have access to, not conspiracy theories.
@myown2101
@myown2101 2 роки тому
@@chris1960 We should find a way to spread this information among people! The enlightened ones will join us! And the rest.... Well...I am afraid we will have to push them of the edge of the planet.
@teppsr
@teppsr 3 роки тому
I’m so glad I made it here. This disease is so unpredictable . When I’m not experiencing symptoms really I feel hopefully, then when they occur I think is this it? Is this where I’m going to lose my ability to move my arm completely? So much uncertainty BUT this speech was so empowering. KEEP FIGHTING!
@carolmatlock
@carolmatlock Рік тому
Really well done! Your description of this disease is great. I love your attitude. We have to stay positive.
@kyrissaclark7549
@kyrissaclark7549 3 роки тому
She’s amazing!!!
@shalinidhir5335
@shalinidhir5335 3 роки тому
Really u r a ms star!!! Loved every word...so inspiring n encouraging!! Thanks for sharing!!! Robin, u r a very fine lady. You will definitely live a very happy n satisfying life.👏👏👏👏👏
@jenniferroshto7377
@jenniferroshto7377 2 роки тому
This is my life every day. What a well spoken Talk. 💥💛
@imuneone
@imuneone Рік тому
Bless you this is so relatable and I appreciate you so much. Stay strong.
@suzettevanderwalt9262
@suzettevanderwalt9262 3 роки тому
I have RA. I needed this.
@jasminejade4679
@jasminejade4679 3 роки тому
My dad has MS and I’m here searching for anything to be able to help him 🥺 I love him so much and I’m afraid he’s giving up on himself and it’s devastating ! I hope I can get better knowledge and insight so I can try and help my dad 🥺 if any one has any advise or things that help them in their everyday life please share with me , thank you so much and I’m sending healing light and energy to each and everyone reading this !
@katelynmatthieu1956
@katelynmatthieu1956 2 роки тому
Same here!! My dad got diagnosed about 2 years ago.. message me if you need someone to talk to😊
@leilasuki162
@leilasuki162 2 роки тому
Look into Overcoming Multiple Sclerosis! Dr. George Jelinek's program. They have a facebook page.
@freespeech343
@freespeech343 2 роки тому
Your dad needs to have a methylmalonic acid test, which will show his tissue level B12. When B12 gets low at the tissue level it causes this acid to elevate and it eats the myelin sheaths from the nerves. A normal B12 blood test won't show the tissue level, you need the methylmalonic acid test. Once the B12 is restored to normal, the body will heal the damaged myelin sheaths in around 2 years.
@jaso9204
@jaso9204 Рік тому
I have PPMS my main symptom is drop foot. so hard to walk but I fight for my happiness
@deb9784
@deb9784 3 роки тому
Thank you for being so courageous! What an example you are to your teenagers and to us all! I have a dear friend with MS, and I want to know how best to come alongside her! You've helped me more than you can know! Blessings to you and your family! 💜💜💜
@vmpo
@vmpo 2 роки тому
So helpful!
@roshanvannam
@roshanvannam 3 роки тому
thank you...."need of the hour" ...!!!
@Vesna101
@Vesna101 Рік тому
I'm in the hospital now and waiting for a diagnose. I'm also 46 y.o.
@JG-td3qw
@JG-td3qw 2 роки тому
With or without MS, we do not know when we will die. It’s best to live life and appreciate living every single day.
@robertzaleski5722
@robertzaleski5722 3 роки тому
Amazing testimony
@showmustgoon5311
@showmustgoon5311 2 роки тому
She said everything I am feeling. Thank you! Great Ted Talk.
@lindalear5000
@lindalear5000 3 роки тому
Thank you for your energy and clarity. My brain/cog fog/word finding issues because of MS are so bad that I gave up public speaking. Dx at 48 10 yrs in and happy to have aggressive treatment to "save my brain".
@gretchenkurz5276
@gretchenkurz5276 3 роки тому
Great talk and simple explanation of MS outsiders can understand without trying. Resistance is futile, acceptance is the best way forward. Embracing this insidious dx is my superpower. It prompts me to learn and laugh. And not just about MS. Ruminating on the future wastes the present. No one gets out of here alive.
@karenyounce7445
@karenyounce7445 2 роки тому
newly diagnosed and this was helpful to me!!
@jannanijland5336
@jannanijland5336 2 роки тому
An inspirational woman!
@cicislife1147
@cicislife1147 3 роки тому
I created my channel to talk about my MS journey! Thanks for sharing!!
@donaldwilson9260
@donaldwilson9260 Рік тому
very good to listen to her speak. My daughter was diagnosed with MS just recently so it is a big adjustment and coming to terms with things. AS with serious health conditions you do not have awareness or understand till things are closer to home.
@AraGrant
@AraGrant Рік тому
Love this 💪🏻 I also have MS and can relate a lot to what you are saying. Keep fighting, your attitude is so inspiring 🧡
@Ricky_Bobby2314
@Ricky_Bobby2314 3 роки тому
Everyday I fight my disease it's a challenge but I continue to stay strong and battle with it.
@Stayinthelight87
@Stayinthelight87 3 роки тому
I got diagnosed with MS 1 week ago. I'm 31 with 2 young boys, thank you I needed it.
@cicislife1147
@cicislife1147 3 роки тому
I have MS too! Follow my journey ! You got this!
@robinbrockelsby549
@robinbrockelsby549 3 роки тому
Exercise, eat healthy, and embrace each second with your littles😊.
@freespeech343
@freespeech343 2 роки тому
You need a methylmalonic acid test to see if your tissue level B12 is low. A regular B12 blood test won't show the tissue level, you need the M acid test. When this acid becomes elevated due to low tissue level B12, it dissolves the myelin sheaths from the nerves and is often misdiagnosed as MS. You might have a genetic defect where you can't absorb B12 and will need monthly injections. Once the B12 is restored to normal levels the body will repair most of the myelin sheaths within 2 years. Good luck
@scottishlad1990
@scottishlad1990 11 місяців тому
Am the same man 33 yo two young boys and getting diagnosed now
@jadedragon6696
@jadedragon6696 2 роки тому
I have cried, laughed and cheered during this amazing talk Im newly diagnosed and have adopted this attitude as its the only choice we have thank you 😘💝
@MrX-cd6be
@MrX-cd6be Рік тому
Thank you for your inspiring story that you shared with us. I myself living in Europe (thankfully we do not worry about our health-bills, since it is funded through taxes) am suffering from PPMS. After getting the diagnosis I went through the same thoughts you went through. It took and still takes a lot of effort to accept this disease. I am only 45 and have still a whole life before me. I am of the opinion that our stay on earth is a gift and we should make the best of it. I try to carry on the life as it was before the diagnoses. Thinking positive in not giving up the battle gives me the strength to go on and being happy.
@prettydisabled9060
@prettydisabled9060 2 роки тому
Awesome video! ♥️
@Amaan001
@Amaan001 3 роки тому
Im diagnosed in 2019 and ALHUMDOULILLAH proudly fighting
@hanaalmansori2333
@hanaalmansori2333 3 роки тому
Me 2 i was diagnosed in 2019 inshaallh you will be able to win it 😊🤲
@Amaan001
@Amaan001 3 роки тому
@@hanaalmansori2333 AMEEN!!
@suave605
@suave605 3 роки тому
@@Amaan001 fight it off man! Believe in Allah, he did not give MS to you without a reason, he gave it to you so he can test you on how you will handle the situation. Fight it off!!
@suave605
@suave605 3 роки тому
@@hanaalmansori2333 ^
@srushtosman5580
@srushtosman5580 2 роки тому
Me 2 same year , How do u fight????
@Queenie97
@Queenie97 3 роки тому
Thank you so much for this speech. You are awesome! I have had MS since 2016. Your description of grieving resonated with me.
@brettsprang7991
@brettsprang7991 3 роки тому
Best damn speaker ever. REAL CANDID HOPE inspiring. Thank you so much...best wishes to you.
@MiloMontang
@MiloMontang 2 роки тому
I was diagnosed yesterday.. yes, we'll be fine!
@slogan43
@slogan43 Рік тому
Loved your attitude towards MS, having MS myself for over 23 years has caused me to appreciate life more than ever . We all have ups and downs, but bouncing back and realizing this life is short helps to maintain a positive attitude on what is out there for us to embrace. GOD bless you and hope to see more of what you have to say.
@dianedavis7100
@dianedavis7100 3 роки тому
So good to know I am not alone.
@Ron-zu1sk
@Ron-zu1sk 3 роки тому
Very inspiring! You guys all rock! Thank you for this! One day at a time... One day at a time.
@Neoyorchese
@Neoyorchese 2 роки тому
These are the real heroes we shall praise. blessings!
@thedreamstreampodcast9538
@thedreamstreampodcast9538 3 роки тому
good luck I was Dx 1996. Still walking (albeit w/ a cane/rollator), still working-on and believing or knowing that I am going to Heal completely and reclaim lost functioning *faith*. You got this!
@rogercookcouk
@rogercookcouk 3 роки тому
Brilliant. Brilliant talk. I can relate to what you shared practically 100% as an MS warrior myself. Thank you. I feel inspired right now and my 'mind over matter' morning had just been beaten. I'm attaching my to-do list!
@bigwock9098
@bigwock9098 2 роки тому
I have ms and this story is bringing me to tears
@valoss
@valoss 4 роки тому
Robin, if you see this-Thank you for sharing your story. Your layman description of this terrible disease was concise and comprehensive. More people need to be aware of how MS impacts your cognitive process. Take care of yourself!
@_IVXX
@_IVXX 3 роки тому
I'm currently watching this from the hospital, I haven't received a concrete diagnosis but all the test and scans they've done so far pointing to Ms. I kind of ignored all the signs in the beginning thinking I just had equilibrium problems, and as far as dizziness goes I'm anemic so that kind of just happens every once in a while I didn't think much of it. Even when my legs started getting heavy I thought it was just a pinched nerve like she said. It took until the point where I realized I couldn't take my car out of park without using all the strength of my left hand, and I was starting to have issues putting pressure on the brake. There were two times when I caught myself very slowly but surely inching forward at a red light. In the beginning the news was kind of songbird but if I had to be honest I always felt in the back of my mind something was going to happen when I got closer to 30. For the past few days I'll be getting steroids via IV and I'll be prescribed medication and treatment when I leave. I've been watching quite a few videos like these well taking the doctor's advice to stay off Google as far as symptoms go, cuz every worst case scenario will be right under the overview section.
@mictaylor88
@mictaylor88 3 роки тому
I was diagnosed in 2016, but my symptoms started in 2013. It takes so long just to get a diagnosis. It started with my left thigh going numb while walking and running. Then i woke up one morning and could not see good. I just wanted a reason for this it took so long. My vision got better with treatments my thigh isn't numb anymore. you wake up every morning and dont know what your condition is going to be like today. Heat and stress is my major things that bring on my attacks. When i was first diagnosed i was grateful for the answer and wanted treatment. The doctor was so surprised i turn down the narcotics. I have a family and ms hasnt slowed me down. I make myself get up some mornings, but i think my health could be worse. I am not dying and if you watch what brings on your attacks and take care of yourself you can live normal and just as long. it just depends on the type you have and if you are health conscious. When people find out i have it its like "oh im so sorry". Thats why i dont tell many people I say dont feel sorry for me it could be worse. My doctor does research and im on a clinical trial they watch my health really closely and so far no attacks in over 2 years. I couldnt walk the drunk test before I started now i can i was having the balance issues now i dont that was so embarrassing i would always make sure i had a shopping cart to hang on too. The spinal taps arent fun but i have done them with no calm down meds. Im in this trial because i want to make a difference I want to help people like me and future generations. i just dont get in the heat and am very aware of stress. Dont think its the end of the world and never give up.
@leylacake5110
@leylacake5110 3 роки тому
You are amazing. I’m going to pray for your continued life with no flares and only happy times going forward! You aren’t alone, I appreciate what you are doing - you deserve the world and more, keep pushing ❤️❤️❤️
@mothegoddess5239
@mothegoddess5239 3 роки тому
Thanks, I needed to hear this. I was diagnosed 2 weeks ago.
@88Ecliptica
@88Ecliptica 2 роки тому
I hope your trial continues going well for you. I hope you don't mind me asking but what is the name of the clinical trial you are currently partaking in?
@tinahatcher5186
@tinahatcher5186 2 роки тому
was just diagnosed and trying to choose a treatment. If you do t nine me asking what is the name of your treatment ? I'm just at beginning stages and have a feeling of not feeling grounded and pins needles..and sometimes a sensations of a feather like tickle brushing across me. Please. advise.
@kookysalsa
@kookysalsa Рік тому
She is very honest and so strong being able to cope living life. I am happy that she has and continues to overcome this.
@ZiggyTheStarman
@ZiggyTheStarman 2 роки тому
You lady made my day. I have been recently diagnosed with MS and am still on my way of accepting it. I can't really tell how I feel, I just don't know what challenges life would bring me in future. How I am going to reschedule my daily routine, how it will affect my work and overall quality of life, it still beats me. But your positive share of thoughts makes me feel happy to the fact that I am still alive and not hopeless, that I am still capable of achievements. It is really emotional for me at the moment to have experienced the diagnosis, and your example has tremendously cheered me up. Today I have agreed with the doctors to be signed on a treatment programme that should help me maintain my health. That makes me hopeful. Thank you sincerely for your inspiring speech. I can't tell you enough how much I needed that
@brooke9885
@brooke9885 Рік тому
I don't have MS but chronic asthma and it has turned my world upside down this video was definitely the encouragement I needed ❤️
@ioanananan
@ioanananan 3 роки тому
Doing your disease , your best partner . MS is like my alarm when I forget taking care of myself .
@zerranwelch8601
@zerranwelch8601 2 роки тому
This really helped me out so much. My name is Dawn. I'm writing from my boyfriend's youtube page, and am helping him understand also what I'm going through with my ms. It's not only my battle in life. It's our battle together. He is truly a gift from god! Our love is so strong as ONE!
@kalikso
@kalikso Рік тому
Just got diagnosed and I want to say thank you for the honesty
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