Today I am going to share my Daughter’s life story, what have happened to her and what condition she is in today. It’s really hard to remember all those moments again but I want to share all this to let everyone know what have happened to me and how with a little mistake can ruin unborn child’s life and the family.
I was 36 weeks and 5 day when suddenly I start bleeding heavily, I went to hospital in ER.
After reaching the hospital(KHUH Bahrain Middle East), one junior doctor started doing the ultrasound, she was confused as she was failed to understand why I bled out. She continuously did ultra sound for about 30 minutes and ended up saying that we will admit you and will observe you. I asked them why you don’t want to operate or induce me right now, she said no I have full 4 weeks left they are not going to induce or operate me, they will only observe and when the bleeding stops they will send me back home.
At that time I did not know all the complications like this as I never heard of a women who bleed out heavily in the end month . So they send me to a ward and did nothing the whole night.
Next morning one doctor came in and checked me and found that I got dilated 3cm, so she send me to the labor room. (That’s my luck or Allah’s Will that I got dilated automatically, otherwise my life was in danger too).
A nurse raptured my membrane and found out that there was no water at all(that was there 1st mistake when doctor did ultrasound at night she even did not check my water level, I was completely dried)so this also cause less oxygen to baby.
Finally I started to have contractions, my daughter born normally, but before her birth right 15 minutes before her heart stopped beating( because what have happened why I bled out? It was placenta abrupt! and whole night she did not get any oxygen and blood in brain
When my daughter born she was flat with no breath, and right after birth I got postpartum hemorrhage.
Her heart stop beating 15 minutes before her birth, and at the same time her brain cells begins to die.
On 3rd day of her life she start seizing, they did MRI and diagnosed that she got HIE. A brain injury due to lack of oxygen and blood in brain. Because my placenta was erupted and they didn't notice and she couldn’t get oxygen and blood in brain.
She stays in NICU for 72 days and come home for the first time.
But she stays only 1 day, next day she started seizing again and that was continuous seizures after every 5 minutes. We took her back to ER and she got admitted in ICU again and never come back home again.
Her seizure were very difficult to control so they finally took decision to sedate her completely and intubate her, and that was the only solution they had to save her life.
They told us that they don’t have treatment in Bahrain, so its better to go to U.S ( because we were U.S citizen) so they made her stable with 11 different kind of medicine which she was getting after every hour.
When she was 5 month old we moved here in USA. The day we landed she got admitted in Westchester Medical Centre, NY. She stayed there for 1 month but she went in worse condition there. They took lots of tests including genetic testing, everything comes back negative and they finally diagnosed her HIE again.
But her seizures were not controlled so they transferred her to another hospital NYU Langone New York City. She stays 4 month there and her seizures got controlled with 6 seizure medicine, finally she comes home. She stayed home only 45 days in her whole 3 year life.
That was the only time when I enjoyed life with her, love her play with her, then she started seizing again and went back to hospital and never comes back.
When she turn 2 year old, she went in serious condition because she was on ventilator 24 hours, at that time doctors were hopeless and they told us they don’t have any treatment left for her. Now give us permission to stop the vent and let her go, that day we cried a lot we pray a lot. We were helpless. We asked the doctors if they have any other solution. They told they can make a hole in her neck and put a trachea tube in that, but with that she will be at high risk of getting infections because she will breathe through the neck hole and not from the nose. And that is also not much beneficial for her.
We as parents held our daughter and accepted her condition since day 1 and never quit the fight and the hope from Allah. Its Allah’s will what has happened to us and her. He chose us to take care of this beautiful daughter and we never felt disheartened by this, rather appreciated even more what God has given us in every thing in life. But the guilt is always there. It would have could have been avoided if there was an awareness and if there wasn’t a negligence, if emergency C section would have done, if we as parents were educated in this. There's always this two letter IF will be there.
Please keep my daughter and all the children and families in prayers who are suffering and fighting this.