It’s very encouraging to hear something so mysterious finally got figured out. It’s like you found the needle in a haystack! It gives hope:-)

It's horrible when you know something is very wrong,but nobody will listen to you.

I am so sorry for your experience....I had tears in my eyes... recalling my daughter's childhood when I knew something was wrong with her and I kept being dismissed and told I was paranoid, over-protective etc because she was perfectly healthy. I finally got her primary pediatrician to listen to me and he referred her to a cardiologist and at 15 years old we found out she had been born with congenital heart defects and because they weren't diagnosed she has a heart/lung disease that has no cure. She is on oxygen and takes medication one is a IV medication through a central line. It is so sad that doctors do not listen and just brush you off... it still happens to this day with my daughter. You have to be so aggressive. Thank you for sharing your story.

Wow! I can’t believe the attitude of your first neurologist! This is important information that needs to be passed on to your children whatever the outcomes were.

I had similar experience

I am so sorry. I empathize with you and I can tell you that I can understand and relate with you. I had been going through that too myself. This was so me. But, I was diagnosed with mild several palsy and and depth perception. I am so sorry you had to go through all of that.

You come off as such a sweet person. You definitely have a wonderful attitude. I've subscribed, hoping to get good news about your condition in the future. Much love until then.

I love this! thank you for sharing

God bless you hun x

I love you Kandi. 💝

God bless ❤🫂✝

❤GOOD ON YOU💐

Wow, what a story! I thought I was diagnosed late at 23. I’m type 3 and 56 now. Very similar stories. I also am keto/carnivore. Thanks for sharing ❤

I had gallbladder disease,and changed my eating habits, because of debilitating pain when I ate. Finally had it removed and still kept the same eating habits because I know from trial and error,some food is fine,but some makes me really sick.

I am so sry Our society is such a failure, esp with sick women. They are dismissed far more often than not and FAR more often than men. I am not asking u for this test. I’m telling u to get it for me! Ur MY dr. I’m not UR patient. U work for ME. That’s how I have to be.