Uncombable Hair Syndrome and Other Rare Genetic Conditions

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Inside Edition

Inside Edition

Рік тому

These are rare medical conditions. In 2017, Jackson, Hunter and Caden Howard were born with a rare genetic disorder called craniosynostosis, which isn't unusual for newborns, but it’s very uncommon in triplets. In 2021, 14-month-old Locklan Sample was born with a rare genetic condition called uncombable hair syndrome. In 2018, Mui Thomas shared her story about living with harlequin ichthyosis. Inside Edition Digital’s Andrea Swindall has more.

КОМЕНТАРІ: 191
@Nyokicat99
@Nyokicat99 Рік тому
The last segment made me cry, that mom saying if her baby wants to hike she would carry her just so she could have that experience. That is so wonderful and sweet.
@victorsamsung2921
@victorsamsung2921 Рік тому
Right! That's when you know the child got sent to the right address. No matter how hard it might be, accepting this rare condition. But love and goodness knows no boundaries. One way or the other.
@feliciajenkins5041
@feliciajenkins5041 Рік тому
Yes 🥲
@brandonbarton9016
@brandonbarton9016 Рік тому
It is so wonderful it shows u what we will go through for others it's just so sad but life's so beautiful
@kayla7562
@kayla7562 Рік тому
@@brandonbarton9016 exactly what I was thinking too
@dannyx498
@dannyx498 Рік тому
How about "mom I want to kill myself because you gave me this embarrassing unlivable condition"
@BK-mo5xh
@BK-mo5xh Рік тому
Omg, those triplets really cute. I can’t stop smiling.
@justlift213
@justlift213 Рік тому
I was stuck on them too, some of the cutest babies ive ever seen
@LiliWhyte
@LiliWhyte Рік тому
Oh yes, I think they're just so adorable! Such sweet innocent cherubs!
@ellaknox4544
@ellaknox4544 Рік тому
I was born with something called mirror movements disorder. Which means my hands involuntarily do the same thing. It's less than one in a million and I'd love to meet someone else who has it one day
@SobrietyandSolace
@SobrietyandSolace Рік тому
Meanwhile I find it impossible to mirror someone. I don’t have the proprioception! Very interesting
@bennekin
@bennekin Рік тому
Is it just your hands or is it your whole arms? And does it always happen or just sometimes
@hase4681
@hase4681 Рік тому
bro the way you could work an assembly line would be unmatched
@sarcasticallyrearranged
@sarcasticallyrearranged Рік тому
Ella, record and upload a video clip of it. Educate us about it.
@adfadgaqgv
@adfadgaqgv Рік тому
I thought it was just being Italian
@guesswhat-chickenbutt
@guesswhat-chickenbutt Рік тому
Mui seems wise beyond her years! 😌
@Bettinasisrg
@Bettinasisrg Рік тому
And all my "big" issues suddenly became a lot smaller! I love brave people they're the true celebrities.
@bing4783
@bing4783 Рік тому
“she can ill help her”. best five words i’ve ever heard.
@LiarNobody
@LiarNobody Рік тому
If the first dude ever becomes a superhero, I'm 100% volunteering as his bizzaro version.
@bullgravy6906
@bullgravy6906 Рік тому
I’m already the bizzaro world. Two steps from the couch to the fridge and it’s time for a breather. Or is that opposite world?
@kayla7562
@kayla7562 Рік тому
Omg I was going to say something about someone else but that mom at the end just made me feel emotional. So glad both of those little girls have such loving parents that will give them the best life possible.
@gamebreadanimal
@gamebreadanimal Рік тому
That mother saying if her daughter wants to ski, she will help her. Or if she wants to hike. I’ll pack her. Where did the worlds mothers like this go. I’m a grown man and this brought a tear to my eye. Prayers for these people and there conditions 🙏🏼
@melissadwiggins
@melissadwiggins Рік тому
I was born with a form of icthyosis too; lamellar icthyosis to be specific. You can't even really tell I have it anymore as I have the mildest case they'd ever seen when I was born.
@rescue9810
@rescue9810 Рік тому
1:40 y’all seen that one triplet hanging there 😂 post operation…. They’re so adorable ❤ each of them looked so different from the other
@ballistic2527
@ballistic2527 Рік тому
I hope they all lead long, happy and fulfilling lives.
@ineedauhmmmuhu
@ineedauhmmmuhu Рік тому
Damn, running from Los Angeles to San Francisco feels like running from cambodia to Thailand, But thats crazy, I can’t even make it to a mile, Further than one mile, Nice one!!
@anthonyguarino4242
@anthonyguarino4242 Рік тому
Only sonic the hedgehog can do that in the few minutes on earth!
@bullgravy6906
@bullgravy6906 Рік тому
Imagine being able to run 350 miles in a single session and instead of running endlessly away from California you just go north to SF.
@vadim9342
@vadim9342 Рік тому
The runner is an absolute badass :)
@aleffush
@aleffush Рік тому
I pray the best for these people and applaud their strength! Inspiring!
@sharonanderson6161
@sharonanderson6161 Рік тому
My heart goes out to these people and for their loving families who give them support and encouragement and teaching their to be independent.The young lady with the skin disorder she has such a beautiful heart and spirit
@sarahschilanakratzer2561
@sarahschilanakratzer2561 Рік тому
The mom at the end was so sweet If she wants top Go hiking and she cant she can i Just carry her... I almost was moved tob tears... I have a Chronicle desease too and my Mum helps me a Lot witch Things i cant do im 30 and she is still with me at every important doctors appointment and Sometimes at normal doctors appointment too
@she_sings_delightful_things
@she_sings_delightful_things Рік тому
The last mother 💔 That teared me up.
@kyodizzy
@kyodizzy Рік тому
There's so many unexplainable conditions out there... I'm suffering from a neurological condition where I feel like I'm constantly rocking on a boat 24/7 every second... It's depressing and early on thought about ending life... Wish there was a cure
@Pronouns1737
@Pronouns1737 Рік тому
That man that has superman strength definitely needs a documentary. He looks cool!!
@yiandrea84
@yiandrea84 Рік тому
Thanks for sharing these stories!
@Epicface888chu
@Epicface888chu Рік тому
So sad. All beautiful kids and people. Love the parents that truly love their children as is. Trying to help them as much as they can!
@its1121skull
@its1121skull Рік тому
No one noticed when it showed distance from Los Angeles to San Francisco, the point was not all the way on San Francisco
@Animalfarm6cats
@Animalfarm6cats Рік тому
The lady with Epidermolysis bullosa is lucky, to be able to shower. I worked with plenty of little children who have it. They had to be wrapped in sterile gauze. My heart hurts for them.
@manningmusic5160
@manningmusic5160 Рік тому
Bro the first guy is Forrest Gump irl 😂
@piglow7808
@piglow7808 Рік тому
Fax
@kellyoyen3421
@kellyoyen3421 Рік тому
My friend Eva has the skin condition where the skin grows really fast
@havik9581
@havik9581 Рік тому
The first running guy - just strap me to his back during a zombie apocalypse 🧟‍♀️🫠
@KITSUNEDEITY.
@KITSUNEDEITY. Рік тому
Lmao yes
@TheSouthIsHot
@TheSouthIsHot Рік тому
I would love to have that first rare genetic condition.
@redlight3932
@redlight3932 Рік тому
We could possibly make a pill that breaks down lactic acid to have the same affects as his condition some day we might be able to take a superhuman pill
@TheSouthIsHot
@TheSouthIsHot Рік тому
@@redlight3932 Great! Let me know when we get there. 👍🏼
@Rayman1971
@Rayman1971 Рік тому
I saw a pic of my maternal grandpa, and noticed his hair looked like mine! Mom and my Aunt tell me that he always looked liked that, no matter what he did. I can't keep my hair looking brushed/combed, they also told me that I have his hair too!!!
@aicelgr7872
@aicelgr7872 Рік тому
God bless them 🙏 love ❤️ for them. I had my daughter with a genetic disorder called I-cell disease. Very very rare, too. She is my angel now 🙏😇
@ninojohnson6911
@ninojohnson6911 Рік тому
My Condolences 🙏
@Jenahh-aye
@Jenahh-aye Рік тому
💔 sending you a world of love.
@elijahevangarcia
@elijahevangarcia Рік тому
I can’t even run one mile Without stopping 😂😂😂😂😂😅
@saiyedf
@saiyedf Рік тому
May God Bless All These People And Us Too.
@prototypefilmproductions
@prototypefilmproductions Рік тому
The triplets holding hands 😍
@rosamunddrag8971
@rosamunddrag8971 Рік тому
So basically the first guy is like a Husky, that can use an alternative source of energy and run for hours lmao
@Crazy_Schizo
@Crazy_Schizo Рік тому
The one with more layers of skin is actually a trait to survive better in colder conditions
@Jay-td5wp
@Jay-td5wp Рік тому
Uncombable baby hair is cute .the 1st guy just wow
@Eevanova
@Eevanova Рік тому
My heart alwalways been hurting about people with ihtiosis
@AsjadSS
@AsjadSS Рік тому
If she wants to hike, I'll carry her😭😭
@paramsinghkaila882
@paramsinghkaila882 Рік тому
God bless this all people ❤️🙏 God with you ❤️🙏
@heidihajny2663
@heidihajny2663 Рік тому
My niece also had the hair disorder, but she was so cute 💜😊💜
@zaza2141
@zaza2141 Рік тому
My baby has it. It's funny.
@BabbyEl14
@BabbyEl14 Рік тому
Impressive😮
@dankification
@dankification Рік тому
The guy that can run 4 marathons in a single session will genetically cheat on being first place each time
@southerngal7582
@southerngal7582 Рік тому
Great Job 👍😄. I'm happy l can just walk to my mailbox.
@callamastia
@callamastia Рік тому
needing surgery on my baby is my biggest fear 😩
@johnsmif7229
@johnsmif7229 Рік тому
I Carrey my lil bro with cp ,he's 90 lbs ,I'm 6'4 170, with terrible back.i got him on my back and walked up a creek to a waterfall and it blew his mind .I was juss glad to make it back lol but I love doing things like that and just being around him is like he glows lol
@JenniferWash
@JenniferWash Рік тому
I would love to know more about Dean
@azankan6734
@azankan6734 Рік тому
The first guy looked tired and sweaty after one marathon!
@marcelshousewife
@marcelshousewife Рік тому
My brothers had the same condition the triplets had, what does that mean for twins?
@janelle9707
@janelle9707 Рік тому
that's me, I can do these things, I love it. however pregnancy was tough on me, and harder on my body, not to be able to run.
@Royalty_girlie
@Royalty_girlie Рік тому
I'm just going to put this out there as a black woman before any other ignorant person comes along as says that uncomable hair syndrome is just a white person with black hair type, it is NOT just like black hair. Comparing the two is not only disrespectful to black hair but to the people with uncomable hair syndrome. Their experience is not the same as black people's, black people's experience is not the same as theirs. That's why it's called uncomable hair syndrome and not "a white person with black type hair that doesn't know how to take care of it". Not everything is about us, we do have to insert ourselves with the slightest things that resemble us. Thank you.
@garyhibbert4875
@garyhibbert4875 Рік тому
Boris Johnston have that type of hair too
@badguacamole3709
@badguacamole3709 Рік тому
Someone with psoriatic arthritis and skin arthritis I feel for the Harlequin gal.
@sukokium
@sukokium Рік тому
rn i can't even run 5 feet without panting
@TheSundayCafeYoutuber
@TheSundayCafeYoutuber Рік тому
Uncombable hair would stand a chance against a few sprays of pump it up
@martianmurray
@martianmurray Рік тому
Sounds like the first guy has an entire body made of cardiac muscle since he never tires
@mr.williams7911
@mr.williams7911 Рік тому
Dean hasn't met goggins.
@imarvlog
@imarvlog Рік тому
They were already Hockey players since when they were born😃
@Nullgative
@Nullgative Рік тому
I can see that baby at the beginning rockin a mohawk.
@Jonniibuzz
@Jonniibuzz Рік тому
He’s in his terry fox era 😭❤️
@funfromabove9728
@funfromabove9728 Рік тому
Wow, that one made me tear up.
@tammy3138
@tammy3138 Рік тому
That's awesome..
@smallfry1463
@smallfry1463 Рік тому
Crazy that all 3 babies were born with the exact same helmets! 😆
@thashroko
@thashroko Рік тому
that mom on the end. superwoman
@kokokat584
@kokokat584 Рік тому
Running 52 miles is crazy
@FatLittleOldLady
@FatLittleOldLady Рік тому
Beautiful.
@jafinch78
@jafinch78 Рік тому
Let's get cures out for all diseases and genetic conditions, regardless of the socioeconomic situation. That's the U.S. Jurisdictions spirit and intent to the letter of the law that I'll advocate!
@goblin6037
@goblin6037 Рік тому
I have a rare genetic disease,not as rare as these but still rare,Hypermobile Ehlers Danlos syndrome
@thelocal0170
@thelocal0170 Рік тому
Surprised the first guy and David goggins haven’t crossed paths in the desert somewhere 😂
@abdishakuraden9612
@abdishakuraden9612 Рік тому
Wow
@RawBombshell
@RawBombshell Рік тому
Dude has the lungs of 50 people lol wow
@AngelJuliet
@AngelJuliet Рік тому
Sometimes I feel like my hair is uncombable 😅 or maybe just untamable 😅
@midnightcereal6973
@midnightcereal6973 Рік тому
Shame on me, i don't have any of this disorder but sitting in my room all days all week. Feeling insecure about thr outside world.
@fajarkurniawan9434
@fajarkurniawan9434 Рік тому
Why people laugh at that hair? That is so cool The baby straight up look like anime protagonist
@-justmecubing-
@-justmecubing- Рік тому
mui came to my school and i got a autograph
@PitsTasteGood
@PitsTasteGood Рік тому
Who else remembers Stew Pickles' Bonkomatic Baby Bumper?
@baksinghay9856
@baksinghay9856 Рік тому
300+ miles 😯😯😯😯
@nicholasc.5944
@nicholasc.5944 Рік тому
first guy would have made a great footballer(not soccer 😡) if he was discovered at a young age, level 9000 endurance he would be like kante on steroids
@liamtgreat
@liamtgreat Рік тому
The ball is made of rubber/plastic, not feet
@StarryNightt.
@StarryNightt. Рік тому
First guy is Chris Traeger in real life.
@Choppswrld21
@Choppswrld21 Рік тому
Omg
@locuscuztheyfocuse4581
@locuscuztheyfocuse4581 Рік тому
damn glad she still doing what she loves and not letting it stop her. now she is a strong women then those women posing just for likes so called strong womens now a days.
@Anonymous-hf3ko
@Anonymous-hf3ko Рік тому
You’re all beautiful
@killerwolfthekingofwolves7704
@killerwolfthekingofwolves7704 Рік тому
The flash is real ⚡️⚡️
@milk_chemistry
@milk_chemistry Рік тому
Couldn't you fix the uncombable hair syndrome with hairspray and gel
@zinrichards9141
@zinrichards9141 Рік тому
😮
@kimitohanahala8674
@kimitohanahala8674 Рік тому
That blonde kid got Son Goku hair.
@Smokie1523
@Smokie1523 Рік тому
Uncombable hair syndrome sounds like a fancy way of saying bald.
@ktro007
@ktro007 Рік тому
Forest Gumps brother!! 🏃 Run Forest, run!!
@janetjohnson7279
@janetjohnson7279 Рік тому
😱😱
@RickCp3
@RickCp3 Рік тому
Hope he's okay
@Qwertyen12345
@Qwertyen12345 Рік тому
Zoolander Baby
@josephcornejo2288
@josephcornejo2288 Рік тому
Hey
@Magic_Doge
@Magic_Doge Рік тому
why does the voice almost sound like AI?
@lilhysterectomy7794
@lilhysterectomy7794 Рік тому
W parents compilation
@nilesdragons65
@nilesdragons65 Рік тому
does Boris Johnson have the same hair condition?
@chillies4156
@chillies4156 Рік тому
Hi
@Volvosky789
@Volvosky789 Рік тому
Your first
@shayewayslowery7315
@shayewayslowery7315 Рік тому
😍😍
@2007Club
@2007Club Рік тому
He hasn’t met David Goggins . They two should meet
@jayone8888bb
@jayone8888bb Рік тому
They look like baby spaceman Apollo 11
@BugsNStuf
@BugsNStuf Рік тому
Real world flash
@schlydops6352
@schlydops6352 Рік тому
He's not fast, he just last longer running and walking, the real flash is Usain Bolt
@AdolfRizzler41
@AdolfRizzler41 Рік тому
My brother has that skin shedding disease below chest area of body
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